> AIs may downplay the seriousness of things. I was chatting with various models and most pushed me in the direction of “you don’t have cancer” for a while. Just something to note.
This is certainly another data point for "never trust AI chatbots".
baoooooooooooo 1 minutes ago [-]
Meaningful.
Our friend group went through the support-mode version of this this year and much of the advice rings true.
To add, a giant shared document that the group of friends had access to in order to take notes. Findings, theories, doctor statements will be shared when the patient isn't in a great place to be taking notes.
And for anyone reading this that might have someone facing cancer in their lives, go make a nuisance of yourself being present - feel empowered to spend a bit more time than you might initially think is necessary/helpful with them. Facing this stuff alone is when it is at its hardest.
sieste 2 minutes ago [-]
The late Jake Seliger and his widow Bess blogged at length about their experience navigating the medical system after his squamous cell cancer diagnosis. That was in 2024/25 though.
jakeseliger.com
bessstillman.substack.com
runjake 8 minutes ago [-]
This is fantastic. Thanks for posting it, JJ. There's a very strong chance you'll save n>0 lives by posting this.
Minor addition: When you talk to someone who has undergone the surgery, try to find someone that's a similar age and in similar shape to you, otherwise you may get wildly varying answers.
You'll respond, experience and heal from a surgery quite differently at 40 vs 50.
akshaydeshraj 5 minutes ago [-]
Extremely sorry you had to go through this.
My only submission will be to consider India, which is fast becoming a hub for medical tourism. You can get any test you want and meet specialists in hours, not even days.
iyonn 3 minutes ago [-]
Thanks! I'm saving it for hopefully never.
I hope your treatment is/was successful!
trvz 5 minutes ago [-]
Frankly, I have the impression that doctors put as little care towards their patients’ health as us programmers do towards our software.
jijji 6 minutes ago [-]
have you tried PNC-27 peptide? It just came on my radar a few months ago from a peptide manufacturer I deal with and it looks promising for multiple tumor cell types, although human testing is lacking. I would try it and do testing to see if it actually reduces tumor sizes as it claims in animal testing.
Rendered at 20:34:48 GMT+0000 (Coordinated Universal Time) with Vercel.
This is certainly another data point for "never trust AI chatbots".
Our friend group went through the support-mode version of this this year and much of the advice rings true.
To add, a giant shared document that the group of friends had access to in order to take notes. Findings, theories, doctor statements will be shared when the patient isn't in a great place to be taking notes.
And for anyone reading this that might have someone facing cancer in their lives, go make a nuisance of yourself being present - feel empowered to spend a bit more time than you might initially think is necessary/helpful with them. Facing this stuff alone is when it is at its hardest.
jakeseliger.com
bessstillman.substack.com
Minor addition: When you talk to someone who has undergone the surgery, try to find someone that's a similar age and in similar shape to you, otherwise you may get wildly varying answers.
You'll respond, experience and heal from a surgery quite differently at 40 vs 50.
My only submission will be to consider India, which is fast becoming a hub for medical tourism. You can get any test you want and meet specialists in hours, not even days.